Our new partnership with PCDH19 Suisse

We are delighted to announce the launch of our new partnership with PCDH19 Suisse.

PCDH19 Suisse was founded in November 2021 and shares our goal of supporting research for a cure for health problems triggered by the PCDH19 gene mutation.

These two associations, inspired by our heart-felt slogan #RariMaInsiemeMenoRari (NB. literally rarebutunitedlessrare) are joining forces to achieve our shared objectives:

  • fund-raising for scientific projects
  • launching competitions to encourage researchers
  • facilitation of cooperation between research institutions
  • promotion of interaction between families in the two countries, through their treatment centres.

We invite all friends of people affected by the PCDH19 gene mutation to visit our new partner’s website:  https://www.pcdh19suisse.ch/pcdh19-suisse