Insieme per la Ricerca PCDH19 – ets
Guided by the slogan #RareButTogetherLessRare, three European associations (Together for PCDH19 Research – ets [Italy] PCDH19 Suisse [Switzerland] – Asociación Epilepsia rosa PCDH19 [Spain]) have long pursued a series of shared objectives, including fundraising...
July 2025 This year, the summer camps organized as part of the “Velando Insieme” project have provided our girls with great experiences. The initiative aims to promote a culture of inclusion, communication strategies, and...
December 14th – A festive evening in Rome to support research on PCDH19.Music and solidarity, what a wonderful combination.Thanks to Orange8 for the fantastic performance.
We are delighted to announce the launch of a partnership between Insieme Per La Ricerca PCDH19 Onlus and the Asociación Epilepsia Rosa PCDH19. This Spanish association, like us, intends to support research into a...
A beautiful book, written by a mother of a child affected by the PCDH19 mutation, to explain epilepsy to even the youngest children. The families of patients affected by the PCDH19 mutation express their...
Dr. Silvia Bassani of the National Research Council (CNR) in Monza will coordinate the project entitled “Study of the cooperation between TRAPPC8 and PCDH19 in the regulation of intracellular trafficking: a point of convergence...
On 28 March 2025 the seventh International Conference on PCDH19 organised by our Association will be held in Rome. https://www.pcdh19conference.org/
We are pleased to announce our new sponsored research project entitled “Genetic therapy – a battle against PCDH19–Clustering Epilepsy” under the direction of Prof PAUL THOMAS and STEFKA TASHEVA of the University of Adelaide...
On 10 March 2023 the sixth International Conference on PCDH19 organised by our Association will be held in Rome.
Insieme per la Ricerca PCDH19-ETS Research invites researchers to participate in the second international tender process for research on PCDH19. The value of the tender is 100,000 euros. The tender is being sent to...