“VELANDOINSIEME” PROJECT
July 2025 This year, the summer camps organized as part of the “Velando Insieme” project have provided our girls with great experiences. The initiative aims to promote a culture of inclusion, communication strategies, and...
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MUSIC & SOLIDARITY
December 14th – A festive evening in Rome to support research on PCDH19.Music and solidarity, what a wonderful combination.Thanks to Orange8 for the fantastic performance.
A new partnership is born between Insieme Per La Ricerca PCDH19 – ets and Asociación Epilepsia rosa PCDH19
We are delighted to announce the launch of a partnership between Insieme Per La Ricerca PCDH19 Onlus and the Asociación Epilepsia Rosa PCDH19. This Spanish association, like us, intends to support research into a...
“IL TEMPO DEL PASSAGGIO DI UN ANTILOPE”
A beautiful book, written by a mother of a child affected by the PCDH19 mutation, to explain epilepsy to even the youngest children. The families of patients affected by the PCDH19 mutation express their...
WINNERS OF THE JOINT CALL BY FONDAZIONE TELETHON AND FONDAZIONE CARIPLO ANNOUNCED
Dr. Silvia Bassani of the National Research Council (CNR) in Monza will coordinate the project entitled “Study of the cooperation between TRAPPC8 and PCDH19 in the regulation of intracellular trafficking: a point of convergence...
SEVENTH INTERNATIONAL CONFERENCE ON PCDH19
On 28 March 2025 the seventh International Conference on PCDH19 organised by our Association will be held in Rome. https://www.pcdh19conference.org/
NEW RESEARCH PROJECT AT THE UNIVERSITY OF ADELAIDE: “Genetic therapy – a battle against PCDH19–Clustering Epilepsy”
We are pleased to announce our new sponsored research project entitled “Genetic therapy – a battle against PCDH19–Clustering Epilepsy” under the direction of Prof PAUL THOMAS and STEFKA TASHEVA of the University of Adelaide...
SIXTH INTERNATIONAL CONFERENCE ON PCDH19
On 10 March 2023 the sixth International Conference on PCDH19 organised by our Association will be held in Rome.
2ND TENDER NOTICE ON PCDH19
Insieme per la Ricerca PCDH19-ETS Research invites researchers to participate in the second international tender process for research on PCDH19. The value of the tender is 100,000 euros. The tender is being sent to...
Our new partnership with PCDH19 Suisse
We are delighted to announce the launch of our new partnership with PCDH19 Suisse. PCDH19 Suisse was founded in November 2021 and shares our goal of supporting research for a cure for health problems...