A new partnership is born between Insieme Per La Ricerca PCDH19 – ets and Asociación Epilepsia rosa PCDH19

We are delighted to announce the launch of a partnership between Insieme Per La Ricerca PCDH19 Onlus and the Asociación Epilepsia Rosa PCDH19.

This Spanish association, like us, intends to support research into a cure for diseases caused by mutations in the PCDH19 gene.

To this end, the two associations, guided by our beloved slogan #RareButTogetherLessRare, will pursue a series of shared objectives:

Raise funds for joint funding of scientific projects
Stimulate competition among researchers by jointly launching calls for proposals and competitions
Facilitate the exchange of information between research laboratories
Facilitate communication between families in the two countries and between relevant clinicians

We invite all friends of people affected by PCDH19 mutations to visit the website https://www.pcdh19.com/